Achondroplasia

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Achondroplasia

Achondroplasia added to diseases eligible for state support in Georgia following 19-day protest

by Tata Shoshiashvili

•2 min read

Achondroplasia, a genetic bone growth disorder that causes dwarfism, has been added to the list of rare diseases eligible for state-funded treatment, after parents of children with the condition held a 19-day continuous protest outside the government chancellery. The amendment to the resolution on state healthcare programmes for 2023, adopted on 30 December 2022, was introduced on 22 May and signed by Prime Minister Irakli Gharibashvili. A group of parents of children with achondroplasia beg

Ketevan Begiashvili (centre): Mother of 13-year-old Zako Mushkudiani. Co-founder of Little People from Georgia. Shota Kincha/OC Media.

Achondroplasia

Parents of children with rare genetic disorder protest lack of medicine

by Shota Kincha

•3 min read

A group of parents of children with achondroplasia, a genetic bone growth disorder, have been protesting continuously in front of the Government Chancellery for the past five days to demand the state provide the medicine needed to treat their children. The parents, supported by members of several political parties and civil society groups, attempted to block the road near the government offices but were stopped by the police. On Sunday, the protesters marched along Rustaveli Avenue before re